Valuable parent-to-parent peer contacts are available to offer understanding, support, and encouragement to those newly diagnosed, or after the birth of their child. We will give unbiased, up-to-date information to those who are struggling with a decision when pre-natal results are received. FEDS makes every attempt to match you with a trained parent contact who has an understanding of your situation from personal experience. To make this uniquely reassuring connection, hospital staff, family members, or the parent may call the Families Exploring Down Syndrome hotline at 586-997-7607, or e-mail us at fedsyndrome@aol.com.
Our New Parent Packets contain a wealth of information to help you right now, and in the future. The packets contain up-to-date information on Down syndrome, the National Down Syndrome Society (NDSS), and the National Down Syndrome Congress (NDSC). Our packet includes a current list of Special Needs reading materials, Families Exploring Down Syndrome newsletters, contact phone numbers for local agencies, Early On of Michigan, and local Intermediate School Districts, as well as a letter inviting you to join Families Exploring Down Syndrome with a one-year complementary membership. We also include specialized growth charts and medical checklists for parents to share with their child's physician. If your hospital did not give you our New Parent Packet, please e-mail a packet request to fedsyndrome@aol.com, or call our hotline at 586-997-7607, and leave a message.
Families Exploring Down Syndrome maintains an extensive library of materials to be lent to members. These materials include up-to-date books on Down syndrome, information on parenting a child with special needs, various learning aids for children, and many other items. Library materials are available for check-out and return at our membership meetings.